What is described as a ‘major step forward’ has occurred in efforts to help people living in Ireland with a horrific skin condition.
Ring-fenced funding has been secured to help the 300 people living in this country with the condition, known as epidermolysis bullosa (EB).
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National charity Debra said it will be a ‘major step forward’ for those battling the cruel and incurable genetic condition.
Alan Morrissey spoke with Liz O’Donoghue, who is only too aware of epidermolysis bullosa.
You can listen to the full interview below
