Living With A Rare Disease: The ‘I Am Number 17’ Awareness Campaign

Clare Changemakers Shine Light on Their Experiences of Living with Rare Disease Through a New Rare Disease Awareness Campaign, ‘I Am Number 17’.

The campaign features 17 ‘Changemakers’ – individuals from all over Ireland living with a rare disease – who are sharing their stories to promote better understanding and awareness of rare diseases in Ireland.

Alan Morrissey was joined by two of the Changemakers featured: Anne and Ciara Micks from County Clare who both live with Ehlers Danlos Syndrome (EDS).

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You can listen to the full interview below.