A teenager living with a debilitating illness says it’s frustrating that she’s being forced to travel to Spain for treatment.
16-year-old Ciara Micks, who’s from Limerick and has family links in Clare, was diagnosed with Ehlers-Danlos Syndromes three years ago – a group of connective tissue disorders that severely compromise mobility and quality of life.
Her condition has deteriorated rapidly and as a result, Ciara and her mother Anne are travelling to Barcelona next month for a life-saving procedure, as there’s no EDS specialist in Ireland.
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They’ve raised close to €70,000 to cover the costs of the treatment – and Ciara has been telling Clare FM’s Morning Focus that it’s the aftermath that frightens her.
