A Clare father says the availability of a life-changing drug to children with Cystic Fibrosis has come as a massive relief to his family and many more across the country.
Patients aged between 6 and 11 will now have access to Orkambi, after Vertex received EU approval to treat children – The Pharmaceutical company is already licensed to provide the drug to sufferers aged 12 and over.
Earlier this year, the HSE agreed to make Orkambi available to Irish patients after major price negotiations with the pharma industry.
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Kieran McCarthy’s 9 year-old daughter Aoibhinn, who suffers from CF, now qualifies for the drug, but he says there’s a nervous wait ahead of trialing the drug.
