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Relief For Clare Family After Life-Changing Drug Made Available

A Clare father says the availability of a life-changing drug to children with Cystic Fibrosis has come as a massive relief to his family and many more across the country.

Patients aged between 6 and 11 will now have access to Orkambi, after Vertex received EU approval to treat children – The Pharmaceutical company is already licensed to provide the drug to sufferers aged 12 and over.

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Earlier this year, the HSE agreed to make Orkambi available to Irish patients after major price negotiations with the pharma industry.

Kieran McCarthy’s 9 year-old daughter Aoibhinn, who suffers from CF, now qualifies for the drug, but he says there’s a nervous wait ahead of trialing the drug.

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