The Health Minister has confirmed the assessment of a drug which would change the lives of two Clare children with cystic fibrosis is a ‘top priority’.
The HSE has been in discussions with pharmaceutical company Vertex since last May to provide the drug Kaftrio to 35 young children with a specific genetic condition.
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A health technology assessment (HTA) has now been ordered, despite the drug already being approved for 140 children with cystic fibrosis, but who have a different genotype.
Clarecastle Fine Gael TD Joe Carey is issuing a fresh appeal for Minister Stephen Donnelly to ensure that red tape doesn’t delay children receiving the medicine.
Listen to the full interview here:
