A Clare Special Needs Assistant who’s pupil is living with a rare and incurable skin disease is calling for an urgent enhancement of nursing care.
12-year-old Casey Connors is a sixth class student in Clondalkin, and suffers from the most severe form of Epidermolysis Bullosa, otherwise known as Butterfly Skin, which can cause extensive blistering and bleeding.
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It’s estimated that just 300 people are living with EB nationwide and the Government has now announced a ring-fenced annual fund of €670,000 towards integrated nursing care.
Casey’s SNA and Tubber native Liz O’Donoghue insists more supports are needed as treatment of the condition can be “traumatic”.
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