CF Campaigners To March On Dáil Today Over Orkambi

Photo © Clare FM

Cystic Fibrosis campaigners will protest outside the Dáil today – over the delay in securing approval for a life changing drug.

The Minister for Health says he hopes that negotiations between the HSE and Vertex Pharmaceuticals – which makes the drug Orkambi – can be concluded in a matter of weeks.

Talks have been ongoing between both sides in an effort to lower the price of the drug.

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Simon Harris says progress has been made and the process is now entering a critical phase.

But CF campaigner Jillian McNulty says sufferers have been waiting long enough.