Susan Sage from Sixmilebridge is the mum of 14-year-old Aoife from who has Ehlers-Dahlos syndrome.
The family need to raise €100,000 for vital treatment for Aoife. More details are available on their Go Fund Me page. ie.gofundme.com/aoifes-surgery-fund. The IBAN number to donate to Aoife’s fund is IE43ULSB 98625010694542