Kilrush Lady Opens Up About Rare Disease

Today on Morning Focus, we heard from a Kilrush lady, Cindy O’Brien, she made contact with the Morning Focus show as she was keen to share her story.

Tomorrow is in fact the 29th of February, it’s a very rare day in itself, therefore it makes it the perfect day to raise awareness for rare diseases. Cindy suffers from Parry Romberg Syndrome, a degenerative condition that affects her face. She’s one of only about 500 people in the world who have the syndrome, which was only diagnosed five years ago, even though she’s had it all her life.

If you missed the interview, you can listen back below:

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