On 25th June 2019 Sarah Summerly was born with OEIS complex – a rare combination of serious birth defects resulting in her liver, intestines and bladder developing outside her body.
Little Sarah will need multiple reconstructive surgeries throughout her life – two of which are due to take place in the UK this year.
Her parents Ger and Michelle will also need to adapt their house to accommodate Sarah’s needs.
A family friend has set up a GoFundMe to raise money towards these costs.
On Tuesday’s Morning Focus, Gavin Grace Grace spoke to Sarah’s mother Michelle about the journey facing the family.